Improving Health Care and Social Support for Patients and Families affected by severe Genodermatoses

The general objective of the project was to improve the delivery of health care and the quality of life for patients and families affected by severe genodermatoses by getting together the stakeholders involved in health care and the social support from the EU Member States and the candidate countries.

The project involved countries of the South Mediterranean and Middle East that have greatly contributed to genetic research and have an extensive experience in the management of genodermatoses.