EURORDIS Black Pearl Awards 2022

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EURORDIS Black Pearl Awards 2022

8 February 2022 - 6:00 pm - 7:30 pm CET


The eleventh edition of the Awards will take place on Tuesday 8 February 2022 from 18:15 until 19:30 CET at the Hotel Le Plaza in Brussels and online to mark the occasion Rare Disease Day.

It will bring together persons living with a rare disease, patient advocates, policy makers, scientists, healthcare professionals, industry representatives, and more.

Hosted every February to coincide with Rare Disease Day, the EURORDIS Black Pearl Awards celebrate the inspirational qualities of people living with a rare disease along with those who go that extra mile to make a difference to their lives.

EURORDIS Black Pearl Awards event page


  • EURORDIS Black Pearl Awards 2022

The 12 award categories recognise the outstanding efforts of individuals, organisations, companies, researchers, scientists, media, and policy makers in bringing about change to improve the lives of the 30 million people in Europe and 300 million worldwide living with a rare disease.

Among all the nominations received, the EURORDIS Board of Directors will select the awardees in October 2021. EURORDIS has partnered with Orphanet for the evaluation of the Scientific Award nominations and with Medtech Europe for the Company Award for Health Technology. A few finalists will be selected for the Young Patient Advocate Award and the Social Media Award, for which the winners will be determined by a public vote.

The awardees will be presented with their awards at the official Ceremony next February, to mark the occasion of Rare Disease Day.

Read more about the categories here.


  • EURORDIS Photo Award

The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and to share your story with the rare disease community and beyond. The contest is open to all nationalities, ages, and diseases. Every year, hundreds of people from all around the world submit their photos, each reflecting the drive of people living with a rare disease.

Read more and take part in the PHOTO AWARD 2022 here. Submissions for the 2022 Photo Award will be open until 16 January 2022.


  • Register for the event

Registration is now open for the next Awards ceremony taking place online on 8 February 2022!

You can register for free by clicking here.



8 February 2022
6:00 pm - 7:30 pm
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