BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Hope - ECPv4.9.13//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Hope
X-ORIGINAL-URL:https://hope.be
X-WR-CALDESC:Events for Hope
BEGIN:VTIMEZONE
TZID:Europe/Brussels
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20200329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20201025T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200514
DTEND;VALUE=DATE:20200516
DTSTAMP:20260429T183021
CREATED:20191118T154433Z
LAST-MODIFIED:20200414T133856Z
UID:11657-1589414400-1589587199@hope.be
SUMMARY:10th European Conference on Rare Diseases & Orphan Products (ECRD)
DESCRIPTION: \nIn the context of the current COVID-19 pandemic and in line with WHO guidelines\, the upcoming ECRD will take place ONLINE on 14-15 May (Full statement).  \n\nRegistration IS OPEN: Until 1 May;\nFREE pre-conference webinar on the Rare2030 Project: 23 April\, 13.00 – 14.00 CEST. Webinar Registration is now open. The webinar is free for all conference attendees to hear the latest outcomes of the Rare2030 Foresight Study and understand how the study lays a foundation for policy discussions at the conference.\n\nHOPE joins the organisation of the European Conference on Rare Diseases & Orphan Products (ECRD)\, which is recognised globally as the largest\, patient-led rare disease event.  \nThe rare disease community has made great strides towards improving diagnosis\, care and treatment for the 30 million people living with a rare disease in Europe in recent decades\, but without vigilance and constant effort\, progress can easily be reversed. The ECRD 2020 theme “The rare disease patient journey in 2030” recognises that the next decade holds great potential for improvement. \nAs the EU shapes its future policy and spending frameworks\, ECRD 2020 serves as an opportunity to press the ‘pause button’ and take the time to co-create policy options today that can lead to a better patient journey in 2030 and beyond. Conference participants will hear from world experts on: future trends in diagnosis\, rights to access healthcare and medicines\, care delivery\, digital health and the development\, assessment and appraisal of therapies. \nThe collaborative dialogue\, learning and conversations that will take place during ECRD will form part of the groundwork to shape the national and international rare disease policies of the future. ECRD 2020 will put a spotlight on emerging trends in best practices\, promising technologies and cutting-edge thinking across the six conference themes: \n\nTheme 1: The future of diagnosis: new hopes\, promises and challenges\nTheme 2: Our values\, our rights\, our future: shifting paradigms towards inclusion\nTheme 3: Share\, Care\, Cure: Transforming care for rare diseases by 2030\nTheme 4: When therapies meet the needs: enabling a patient-centric approach to therapeutic development\nTheme 5: Achieving the triple A’s by 2030: Accessible\, Available and Affordable Treatments for people living with a rare disease\nTheme 6: The digital health revolution: hype vs. reality\n\nConference Programme\nRead more: https://www.rare-diseases.eu/ \n
URL:https://hope.be/event/11657/
CATEGORIES:Next event,On the home page
ATTACH;FMTTYPE=image/jpeg:https://hope.be/wp-content/uploads/2019/11/EIMeG3fXsAAVwb5.jpg
END:VEVENT
END:VCALENDAR